Kool Families

Each of these individuals is living with Koolen-de Vries Syndrome. Which means… so are each of their families. And they each have their own story to share.

Meet the Kool Individuals and Their Families.

Please take a moment to read their stories, and then consider helping.

Would You Like Your Family to be Included?

It would be an honor to have your family represented among the Foundation’s partner families and as a part of the fight to advocate for and accelerate discovery of a cure.

Submit Your Kool Individual