Board of Directors

Ashley Point

President

Ashley Point grew up in Marietta, Georgia and graduated from the University of Kentucky in 1999.  After college she moved to Washington, DC to work in national political fundraising.  She […]

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Gabe Stagner

Treasurer

Gabe was born and raised in North Texas, and currently lives in Dallas, TX with his wife, Shelley, and four children, Quinn (15), Bennett (11), Isabelle (8), and Reid (7). […]

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Alayna Haynam

Board Member

Alayna graduated from Ohio Northern University with a degree in civil engineering. In 2011, she and her husband, Ryan, welcomed their first child, Mirabel. At 3 months old, Mirabel was […]

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Neal Deremer

Board Member

Neal grew up in rural Nebraska working on his mom and dad’s farm until he enlisted into the US Air Force in 1990. While in the USAF he traveled around […]

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Kaci Fisher

Board Member

Kaci Fisher resides in Nashville, TN with her husband, Matt, and two children, Hudson (9) & Taylor (6). She is a magna cum laude graduate of Belmont University in Nashville, […]

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Emily Lemke

Board Member

Emily (she/her) has lived all over the United States, working in both music education and clinical mental health. She holds a master’s degree in social work from the University of […]

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Jessica Collier

Board Member

Jess grew up and resides in small town Kansas, graduated from Pittsburg State University with a degree in Public Relations and Human Resources. She is married to Ryan with two […]

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Cindy Asbury

Board Member

A New Orleans, Louisiana native, Cindy now calls Nashville, Tennessee home.  She has lived around the world, spending time in Lagos, Nigeria, and Luanda, Angola while attending high school in […]

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Maria Luisa Valentin de Solis

Board Member

My name is Maria Luisa, I am from Spain. I’m married to Gonzalo and we are parents of 4 children, the youngest one is Gonzalo, who is 5 years old, […]

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Matt Holcombe

Board Member

Matt Holcombe lives in Colorado Springs and has been part of the KdVS Community since 2017. His son was diagnosed with Koolen-de Vries Syndrome at age seven and is now a Kool […]

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Katie Maher

Board Member

Katie grew up and currently lives about 25 minutes outside Chicago with her husband Ben and two children- Kool Kid Jack (4) and Maggie Moo (1).  She earned her bachelor’s […]

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