25 Jan

Introduction to the UCLA CHAMPION Study

In a new study, UCLA researchers are looking to learn about motor, cognitive, and behavioral developmental in children with Koolen-de Vries Syndrome that are 1-5 years of age. The study […]

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30 Nov

University of Maryland Brain and Tissue Bank

This session featured guest Dr. Thomas Blanchard who is the Director of the University of Maryland Brain and Tissue Bank. He provided an overview of the Tissue Bank’s mission, how […]

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26 Oct

Community Participation in Developing Treatments for KdVS

This video is the first in our newest series “Research Chat with KdVSF CSO.” Our Chief Scientific Officer, Dr. Anna Pfalzer delivers this month’s topic on “The Importance of Community […]

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31 Jul

A Conversation with Dr. Brooke Latour

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16 Jun

A Conversation with Bea Moise

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14 Jun

It Takes a Village: IEPs 5th-12th grades

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13 May

It Takes a Village: IEPs Pre-K through 4th grade

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18 Sep

Our Very Favorite Syndrome!

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