Patient Advocacy Summit

Join the Koolen-de Vries Syndrome Foundation on July 19-23, 2023

The Summit is on Facebook!

To stay up to date on the Summit, follow the Summit Facebook page!

Hotel Accommodations

Hotel accommodations will be available at the Seaworld Resort Renaissance Hotel. A block of hotel rooms will be reserved at a special rate during the Sumit as well as before and after if you wish to extend your stay.

Summit Registration - Not yet Available

Registration details coming soon.