Koolen-de Vries Syndrome Foundation

Scientific and Patient Advocacy Summit

Radboud University Medical Center

Nijmegen, Netherlands

October 1-2, 2026

Patient Advocacy Summit

The KdVS Foundation is hosting its first European Summit in Nijmegen, Netherlands at Radboud UMC.  Researchers, clinicians, industry partners, and families will come together for the first annual European meeting focused on Koolen-de Vries Syndrome.

Scientific Summit

The KdVS Foundation will host an all-day Scientific Summit. This event is open to KdVS researchers who will join together to discuss current and future research, to network and to collaborate.

Sponsorship Information

Support and partnerships are vital to helping the KdVS Foundation achieve our mission. We are happy to customize packages for all donations, please contact Ashley at [email protected] for more information.

European Summit 2026 FAQs

COMING SOON!