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December 2022

KdVSF Connect – Newly Diagnosed Meet & Greet

December 10 @ 12:00 pm - 1:00 pm

Join the KdVS Foundation for a virtual Meet & Greet for newly diagnosed families (diagnosis within the last two years). The event takes place Saturday, December 10, 2022 at 12 pm EASTERN TIME. Not sure what time that is for you? Check your time zone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We would love to have you…

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January 2023

KdVSF Connect – Kool Family Meet & Greet

January 7, 2023 @ 12:00 pm - 1:00 pm

Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place January 7, 2023 at 12 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We would love…

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February 2023

KdVSF Connect – NEW Emotional Support Group Series

February 5, 2023 @ 8:00 pm - 8:45 pm

We are trying something NEW! In the past, the KdVSF Connect Emotional Support group meetings have been very popular. This February, we are offering a small group series of emotional support group meetings. This group will meet four times in the month of February and we ask attendees to commit to attend 3 of the 4 group meetings. The emotional support group meetings will be held on February 5, 12, 19 and 26 at 8 pm EASTERN. Not sure what…

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March 2023

KdVSF Connect – Emotional Support Group

March 11, 2023 @ 12:00 pm - 1:00 pm

Join the KdVS Foundation for the virtual Emotional Support Group. This support group is for KdVS Caregivers. The event takes place March 11, 2023 at 12 pm EASTERN TIME. Not sure what time that is for you? Check your time zone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We would love to have you join us! Don’t forget…

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April 2023

KdVSF Connect – Kool Family Meet & Greet

April 23, 2023 @ 8:00 pm - 9:00 pm

Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place April 23, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We would love…

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May 2023

KdVSF Connect – Verbal Speech Challenges

May 21, 2023 @ 8:00 pm - 9:00 pm

Join the KdVSF Foundation to discuss Koolen-de Vries Syndrome and speech challenges. The event takes place May 21, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We would love to have you join us! Don’t forget to register!

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June 2023

KdVSF Connect – Summit Discussion

June 10, 2023 @ 12:00 pm - 12:30 pm

Are you attending the Koolen-de Vries Syndrome Foundation's Patient Advocacy Summit? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event takes place June 10, 2023 at 12 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We…

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KdVSF Connect – Summit Discussion

June 11, 2023 @ 8:00 pm - 8:30 pm

Are you attending the Koolen-de Vries Syndrome Foundation's Patient Advocacy Summit? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event takes place June 11, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your timezone HERE! KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends. We would…

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