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June 2019

2019 KdVS Patient Advocacy Summit

June 27 - June 29
Newpark Resort, Park City, Utah, 1476 Newpark Boulevard
Park City, UT 84098 United States
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Free – $50
KdVS 2019 Summit Event Page Cover Photo

We are pleased to present the 2019 KdVS Patient Advocacy Summit in Park City, Utah on June 27-29, 2019. Learn from top scientists, meet other families and Kool kids and enjoy the beautiful Utah mountains!

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July 2019

KdVS Awareness Day

July 17
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