Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. Sunday, 05/17/2026 at 8 pm EST

Join Summit Co-Chairs Katie Maher & Tony Pechek to dive into the feedback we received from the 2025 KdVSF PAS. Once we analyze and discuss what participants had to say, then we'll begin making some decisions about what we'll carry into this next summit in Colorado. We'll also begin delegating tasks and responsibilities to our lovely […]

A day to celebrate our first-ever Kool Klinic officially opening! Read more about our inaugural Kool Klinic, dates patients will be seen and how to get on our patient schedule: HERE