Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. Sunday, […]

Join Summit Co-Chairs Katie Maher & Tony Pechek to dive into the feedback we received from the 2025 KdVSF PAS. Once we analyze and discuss what participants had to say, then […]

A day to celebrate our first-ever Kool Klinic officially opening! Read more about our inaugural Kool Klinic, dates patients will be seen and how to get on our patient schedule: […]