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PRODID:-//Koolen-de Vries Syndrome Foundation | KDVS - ECPv6.15.18//NONSGML v1.0//EN
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METHOD:PUBLISH
X-WR-CALNAME:Koolen-de Vries Syndrome Foundation | KDVS
X-ORIGINAL-URL:https://kdvsfoundation.org
X-WR-CALDESC:Events for Koolen-de Vries Syndrome Foundation | KDVS
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DTSTART:20260308T070000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260717
DTEND;VALUE=DATE:20260718
DTSTAMP:20260630T174439
CREATED:20260622T190658Z
LAST-MODIFIED:20260622T190658Z
UID:20592-1784246400-1784332799@kdvsfoundation.org
SUMMARY:KdVS Day 2026!
DESCRIPTION:Koolen-de Vries Syndrome Awareness Day is observed annually on July 17. The goal is to raise awareness for Koolen-de Vries Syndrome (KdVS) and to bring people together across the globe to show support for those who are impacted by this rare genetic syndrome. Why the 17th? Because the microdeletion or the KANSL1 mutation is located on the chromosome 17. \nLearn more about KdVS Day and some fundraising ideas HERE.
URL:https://kdvsfoundation.org/event/kdvs-day-2026/
LOCATION:CO
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260722T080000
DTEND;TZID=America/Detroit:20260722T170000
DTSTAMP:20260630T174439
CREATED:20260622T190421Z
LAST-MODIFIED:20260622T191114Z
UID:20590-1784707200-1784739600@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official third patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day-2/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20260923T080000
DTEND;TZID=America/Detroit:20260923T170000
DTSTAMP:20260630T174439
CREATED:20260622T190945Z
LAST-MODIFIED:20260622T190945Z
UID:20594-1790150400-1790182800@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official fourth patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day-3/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20261028T080000
DTEND;TZID=America/Detroit:20261028T170000
DTSTAMP:20260630T174439
CREATED:20260622T191329Z
LAST-MODIFIED:20260622T191329Z
UID:20596-1793174400-1793206800@kdvsfoundation.org
SUMMARY:Kool Klinic Patient Day!
DESCRIPTION:Our official fourth patient day for Kool Klinic! \nRead more about our inaugural Kool Klinic\, dates patients will be seen and how to get on our patient schedule: HERE
URL:https://kdvsfoundation.org/event/kool-klinic-patient-day-4/
LOCATION:Children’s Hospital Colorado\, 13123 E 16th Ave\, Aurora\, CO\, 80045\, United States
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