Megan Hartwell

Megan grew up in Arizona’s “Valley of the Sun” before moving to San Diego, California, after earning her undergraduate degree from Arizona State University’s W.P. Carey School of Business. In San Diego, she completed her M.B.A. with a focus on marketing, launched her career in the marketing field, and met her husband, Trey.

In 2020, Megan and Trey welcomed their first son, Ryder, beginning their journey into parenthood. In August 2022, when Ryder was 1.5 years old, he was diagnosed with Koolen-de Vries Syndrome, opening a new chapter in their lives filled with advocacy, learning, and community. Since then, Megan’s passion for supporting individuals with special needs has only grown. In 2023, their family expanded with the birth of their second son, Colton.

Now living in Pen Argyl, Pennsylvania, Megan is committed to raising awareness for the Koolen-de Vries Syndrome community. With a strong background in strategy, campaign management, and content creation, she is dedicated to advancing the Foundation’s mission through patient advocacy, fundraising, and community outreach. Megan brings both her professional expertise and her personal passion to her role, and she is honored to support and grow the KdVS community.