Xylynn

Age: 3

Mutation or Deletion: Mutation

Diagnosis Date: 09/27/2022

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“ You are BRAVER than you believe. STRONGER than you seem. SMARTER than you think, and more loved than you will ever know. ”

How did you feel when your child was first diagnosed?

Relieved. We were happy to put a name to all her symptoms.

How does KdVS affect your child?

Developmental delays.