Johan

Age: 12

Sibling's Name(s): Illan

Parent's First Name(s): Fabienne

Parent's Last Name(s): Merel bressy

Mutation or Deletion: Deletion

Diagnosis Date: 10/06/2016

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What does your KdVS individual love the most?

Do some drumming with his dad

What is the hardest part about being a KdVS parent?

Not to know what will his future