GenIDA Research Published

FREE Research Article Alert!

GenIDA is an international patient registry for individuals diagnosed with intellectual disability, autism spectrum disorder, and/or epilepsy, which is based on an online questionnaire that is completed by parent caregivers. In this study, the GenIDA data on Koolen-de Vries syndrome (KdVS) was analyzed illustrating the value of GenIDA and patient/caregiver participation in rare [genetic](…/biochemistry…/genetics “‌”) neurodevelopmental disorders (NDDs). The article is FREE and offers a comprehensive review of KdVS individuals.

Read it here:…/pii/S2949774423008269

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