February 29, 2024

32 Countries – Contact Registry

In honor of Rare Disease Day, we want to share this map illustrating just how diverse our Kool Community really is. There are Kool Individuals in 32 countries currently registered in our KdVS Foundation Contact Registry. Koolen-de Vries Syndrome is considered one of the 6,000+ rare diseases discovered.

Join our contact registry to be counted here: https://kdvsfoundation.org/contact-registry/

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