Children’s Book about KdVS

Exciting news!! “My Brother is a Kool Kid: A Children’s Book About Koolen-de Vries Syndrome for Siblings” is now available on Amazon! This heartwarming book follows the journey of siblings McKenna and Dallen, offering insight into life with Koolen-de Vries Syndrome and providing support for siblings. Author McKenzie Bell wrote this book as part of her studies in genetic counseling at Boise State University.

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