Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Thursday, 2/3/2024 at 8 pm EST Saturday, 5/18/2024 at 12 pm EST Zoom link coming soon.

Join Chief Scientific Officer Dr. Anna Pfalzer to hear about the UCLA CHAMPION Study to learn more about this research opportunity. Register here.     UCLA CHAMPION STUDY (CHROMATINOPATHIES AND AUTISM: MOTOR PHENOTYPING AND INDICATORS OF NEURODEVELOPMENT) This study is being conducted both in-person at UCLA in Los Angeles and virtually. Eligible children anywhere in […]

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 1/21/2024 at 8 pm EST Thursday, 4/11/2024 at 8 pm EST