Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

Join Chief Scientific Officer Dr. Anna Pfalzer to hear about the UCLA CHAMPION Study to learn more about this research opportunity. Register here.     UCLA CHAMPION STUDY (CHROMATINOPATHIES AND […]

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 1/21/2024 […]