Join Koolen-de Vries Syndrome Foundation and Megan O'Boyle of RARE-X for an introduction to the RARE-X platform. We are very excited about the launch of the KdVS Data Collection Program […]

Join KdVS Foundation's Kaci Fisher on June 14, 2022 at 6 pm ET as she speaks with Bea Moise about the siblings of special needs individuals. The first half of […]

Koolen-de Vries Syndrome Foundation, iDefine and SETBP1 Society are excited to form a partnership called “It Takes a Village”. Through this partnership, our wonderful communities will have the chance to […]