Come learn about GI issues such as reflux, feeding tubes, constipation, and more from pediatric GI doctor and Koolen-de Vries Syndrome dad Russ Zwiener. The discussion will be led by […]

We are trying something NEW! In the past, the KdVSF Connect Emotional Support group meetings have been very popular. This February, we are offering a small group series of emotional […]

Join the KdVS Foundation for a casual Meet & Greet virtual event! Kool individuals of all ages and their families are welcome to attend! The event takes place January 7, […]