Koolen-de Vries Syndrome Awareness Day is observed annually on July 17. The goal is to raise awareness for Koolen-de Vries Syndrome (KdVS) and to bring people together across the globe […]

Our official third patient day for Kool Klinic! Read more about our inaugural Kool Klinic, dates patients will be seen and how to get on our patient schedule: HERE

Our official fourth patient day for Kool Klinic! Read more about our inaugural Kool Klinic, dates patients will be seen and how to get on our patient schedule: HERE

Our official fourth patient day for Kool Klinic! Read more about our inaugural Kool Klinic, dates patients will be seen and how to get on our patient schedule: HERE