Join Chief Scientific Officer Dr. Anna Pfalzer to hear about the UCLA CHAMPION Study to learn more about this research opportunity. Register here.     UCLA CHAMPION STUDY (CHROMATINOPATHIES AND […]

Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

Join us for a chat with Dr. Lacey Carmen Chetcuti of Stanford University about a new research study that will look at both children who are typically developing and children […]

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Tuesday, […]

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Thursday, 4/11/2024 […]

Join our Chief Scientific Officer Dr. Anna Pfalzer on Thursday, April 25, 2024 at 12:00 PM ET as she chats with Research Associate James Schmidt who works in Dr. Helen […]

Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

Join Koolen de Vries Syndrome Foundation's Chief Scientific Officer Dr. Anna Pfalzer for a zoom webinar with Dr. Yann Herault. The webinar will be held May 30, 2024 at 11 […]

Join us Thursday 6/27/24 for a Research Chat with KdVSF Chief Scientific Officer Dr. Anna Pfalzer and Adalyn Kim, a genetic counselor student at Medical College of Wisconsin. This chat […]