Join our chat from 7:00-8:00pm EST to chat about Registration for KdVSF Summit 2025!

Join our KdVS Chicago-based family, The Mahers, on May 26th at 6PM CST virtually for a deep dive on Chicago must-sees while you’re at the summit this summer. From incredible downtown stops like the Willis Tower, Shedd Aquarium, or the Millennium Park Chicago Bean to suburban stops like Brookfield Zoo, Morton Arboretum, or the premier […]

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. Sunday, 09/14/2025 at 8 pm EST

Join us for a virtual Natural History Study Update meeting on Tuesday, September 30 at 11am EST. Hear directly from KdVS experts: Dr. Nicolo Pini - EEG study updates Meagan Hutchinson - additional data and research progress Dr. Anna Pfalzer - research insights and next steps This event is for all who participated in research […]

Join the KdVS Foundation for a meeting all about school, open to any KdVS families! We look forward to connecting and supporting you. Sunday, 10/12/2025 at 8 pm EST

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 11/09/2024 at 8 pm EST

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. Sunday, 01/11/2026 at 8 pm EST

Join the KdVS Foundation for a meeting all about speech, open to any KdVS families! We look forward to connecting and supporting you. Sunday, 02/08/2026 at 8 pm EST

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 03/08/2026 at 8 pm EST