Are you attending the Koolen-de Vries Syndrome Foundation’s Patient Advocacy Summit in Chicago? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event takes place June 22, 2025 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your time zone HERE!

KdVSF Connect events are a great opportunity for the KdVS community to join together virtually to discuss topics of interest, to receive support and to make new friends in our community. We would love to have you join us!

Don’t forget to register here!