September 28, 2023
CURE Epilepsy, a US based 501c3 nonprofit organization, recently released their latest report – “25 Years of Researching to CURE Epilepsy”. The mission of the organization is to find a cure for epilepsy, by promoting and funding patient-focused research.
CURE Epilepsy selected Koolen-de Vries Syndrome Foundation to co-fund a Rare Epilepsy Partnership Award – a $100,000 USD grant to support the development of necessary tools, techniques, model systems and data collection platforms to stimulate research on rare epilepsies. The $100,000 grant was awarded to Dr. Hans Van Bokhoven. Dr. Van Bokhoven attended the 2023 Koolen-de Vries Syndrome Foundation’s Patient Advocacy Summit and provided an update on his grant funded research.
Dr. Bokhoven’s research is mentioned on page 25 of the latest CURE Epilepsy report.