In April many Australian KdVS families came together for a fun filled weekend on the Gold Coast. Queensland. The Gold Coast is situated in South-East Queensland and was easy for families to access with 2 major airports at Brisbane and Coolangatta. A total of 12 families (45 people) attended the fun 3 days and there […]
The 2014 Annual Koolen-de Vries Syndrome Gathering was held on July 26th and was a great success! A total of 33 Kool Kids and their families made the trip to join their extended KdVS family in Dallas, TX.
On August 10, 2013, Indiana was our Gathering place for all KDVS/C17 Families. We hosted events starting on Wednesday prior to the 10th and continued through the following Tuesday.
