The 2014 Annual Koolen-de Vries Syndrome Gathering was held on July 26th and was a great success! A total of 33 Kool Kids and their families made the trip to join their extended KdVS family in Dallas, TX.
On August 10, 2013, Indiana was our Gathering place for all KDVS/C17 Families. We hosted events starting on Wednesday prior to the 10th and continued through the following Tuesday.
