Friday, September 30: Hotel check-in, informal evening with families, doctors and professionals. Evening meal provided through funding. Saturday, October 1: Breakfast (included with room). Morning – Q&A with Dr. Koolen […]
READ MOREThe 2016 Koolen-de Vries Syndrome Gathering was held in Columbus, Ohio, July 7-9, 2016. The gathering was predominately a social event with lots of time for networking and visiting with […]
READ MOREA USA Koolen-de Vries Syndrome gathering was held July 11, 2015 in Asheville, North Carolina. Many families arrived a few days early to attend additional fun activities. Ted and Stephanie […]
READ MOREAn informal KDVS Europe gathering is planned for May 9, 2015. If you are interested, please contact Mandy at [email protected]. Check out this link for more details. Do you have […]
READ MOREIn April many Australian KdVS families came together for a fun filled weekend on the Gold Coast. Queensland. The Gold Coast is situated in South-East Queensland and was easy for […]
READ MOREThe 2014 Annual Koolen-de Vries Syndrome Gathering was held on July 26th and was a great success! A total of 33 Kool Kids and their families made the trip to […]
READ MOREOn August 10, 2013, Indiana was our Gathering place for all KDVS/C17 Families. We hosted events starting on Wednesday prior to the 10th and continued through the following Tuesday.
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