30 Sep

2016 – Sept 30-October 2 – KdVS/Unique Study Weekend

Friday, September 30: Hotel check-in, informal evening with families, doctors and professionals. Evening meal provided through funding. Saturday, October 1: Breakfast (included with room). Morning – Q&A with Dr. Koolen […]

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7 Jul

2016 – July 7-9, Columbus, Ohio

The 2016 Koolen-de Vries Syndrome Gathering was held in Columbus, Ohio, July 7-9, 2016. The gathering was predominately a social event with lots of time for networking and visiting with […]

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11 Jul

2015 – July 9-11, Asheville, North Carolina

A USA Koolen-de Vries Syndrome gathering was held July 11, 2015 in Asheville, North Carolina. Many families arrived a few days early to attend additional fun activities. Ted and Stephanie […]

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9 May

2015 – May 9, Lea Green, Matlock, Derbyshire

An informal KDVS Europe gathering is planned for May 9, 2015. If you are interested, please contact Mandy at [email protected]. Check out this link for more details. Do you have […]

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19 Apr

2015 – April 17-19, Gold Coast, Queensland

In April many Australian KdVS families came together for a fun filled weekend on the Gold Coast. Queensland. The Gold Coast is situated in South-East Queensland and was easy for […]

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26 Jul

2014 – July 24-26, Dallas, Texas

The 2014 Annual Koolen-de Vries Syndrome Gathering was held on July 26th and was a great success! A total of 33 Kool Kids and their families made the trip to […]

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10 Aug

2013 – Indianapolis, Indiana

On August 10, 2013, Indiana was our Gathering place for all KDVS/C17 Families. We hosted events starting on Wednesday prior to the 10th and continued through the following Tuesday.

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