Kool Katie models in the Runway of Dreams Fashion Show
Check out these photos of Kool Katie modeling in the Runway of Dreams fashion show. Her photo can also be found in the June 13, 2016 issue of People Magazine.
Kool Kid Colby with Western Wishes in People Magazine
Kool Kid, Colby, was featured in a photo shoot for Western Wishes Founder, Donnalyn Quintana that was featured in the June 17, 2013 issue of People Magazine .
The 2016 Koolen-de Vries Syndrome Gathering was held in Columbus, Ohio, July 7-9, 2016. The gathering was predominately a social event with lots of time for networking and visiting with […]
A USA Koolen-de Vries Syndrome gathering was held July 11, 2015 in Asheville, North Carolina. Many families arrived a few days early to attend additional fun activities. Ted and Stephanie […]
An informal KDVS Europe gathering is planned for May 9, 2015. If you are interested, please contact Mandy at [email protected]. Check out this link for more details. Do you have […]
In April many Australian KdVS families came together for a fun filled weekend on the Gold Coast. Queensland. The Gold Coast is situated in South-East Queensland and was easy for […]
The 2014 Annual Koolen-de Vries Syndrome Gathering was held on July 26th and was a great success! A total of 33 Kool Kids and their families made the trip to […]
On August 10, 2013, Indiana was our Gathering place for all KDVS/C17 Families. We hosted events starting on Wednesday prior to the 10th and continued through the following Tuesday.
