11 Jul

2015 – July 9-11, Asheville, North Carolina

A USA Koolen-de Vries Syndrome gathering was held July 11, 2015 in Asheville, North Carolina. Many families arrived a few days early to attend additional fun activities. Ted and Stephanie Needham hosted the gathering and it was clear that they spent a lot of time fundraising and planning to host a huge number of families. […]

READ MORE
9 May

2015 – May 9, Lea Green, Matlock, Derbyshire

An informal KDVS Europe gathering is planned for May 9, 2015. If you are interested, please contact Mandy at mhazelgrave@aol.com. Check out this link for more details. Do you have photos from the event that you’d like to share? Please use our Contact page to let us know! We’ll contact you to get the photos […]

READ MORE
19 Apr

2015 – April 17-19, Gold Coast, Queensland

In April many Australian KdVS families came together for a fun filled weekend on the Gold Coast. Queensland. The Gold Coast is situated in South-East Queensland and was easy for families to access with 2 major airports at Brisbane and Coolangatta. A total of 12 families (45 people) attended the fun 3 days and there […]

READ MORE
26 Jul

2014 – July 24-26, Dallas, Texas

The 2014 Annual Koolen-de Vries Syndrome Gathering was held on July 26th and was a great success! A total of 33 Kool Kids and their families made the trip to join their extended KdVS family in Dallas, TX.

READ MORE
10 Aug

2013 – Indianapolis, Indiana

On August 10, 2013, Indiana was our Gathering place for all KDVS/C17 Families. We hosted events starting on Wednesday prior to the 10th and continued through the following Tuesday.

READ MORE