News Archives - Page 4 of 9 - Koolen-de Vries Syndrome Foundation

5 Dec

University of Maryland Brain & Tissue Bank

Did you miss our Research Chat with the KdVSF CSO webinar? Don’t worry – it’s available to view on YouTube! Use the link below to hear our CSO Dr. Anna […]

30 Nov

University of Maryland Brain and Tissue Bank

This session featured guest Dr. Thomas Blanchard who is the Director of the University of Maryland Brain and Tissue Bank. He provided an overview of the Tissue Bank’s mission, how […]

26 Oct

Community Participation in Developing Treatments for KdVS

This video is the first in our newest series “Research Chat with KdVSF CSO.” Our Chief Scientific Officer, Dr. Anna Pfalzer delivers this month’s topic on “The Importance of Community […]

29 Sep

Spain Swimming Fundraiser Success!

For the third consecutive year, Board Member Maria Luisa and her family have organized the Cadiz-El Puerto Swimming Challenge to raise awareness and funds for Koolen-de Vries Foundation, Spanish Association […]

29 Sep

2023 Kool Kampaign

With all of the hard work from the many Kool Fundraising Warriors, we SURPASSED our goal of $100K! All money raised during this Kool Kampaign directly benefits research into Koolen-de […]

28 Sep

Cure Epilepsy Grant

CURE Epilepsy, a US based 501c3 nonprofit organization, recently released their latest report – “25 Years of Researching to CURE Epilepsy”. The mission of the organization is to find a […]

5 Jun

KdVS Foundation awards Investigator Grant

For Immediate Release May 31, 2023 Koolen-de Vries Syndrome Foundation Working with St. Jude Children’s Research Hospital Through Investigator Grant Program WILMINGTON, N.C. – The Koolen-de Vries Syndrome (KdVS) Foundation […]

17 Apr

The Koolen-de Vries Syndrome Foundation selected for the Rare Epilepsy Partnership Award

For Immediate Release April 11, 2023 The Koolen-de Vries Syndrome Foundation selected for the Rare Epilepsy Partnership Award WILMINGTON, N.C. – The Koolen-de Vries Syndrome (KdVS) Foundation has been awarded […]

31 Jan

Chief Scientific Officer Announced

February 1, 2023 The Koolen-de Vries Syndrome Foundation is excited to announce that Dr. Anna Pfalzer, of Vanderbilt and COMBINEDBrain, has been hired as the Foundation’s first-ever Chief Scientific Officer. […]

6 Jan

Commercial featuring KdVS

Did you know that Cox Communications recently filmed and released an online commercial featuring three individuals diagnosed with Koolen-de Vries Syndrome? Thank you to Cox Communications and the Kool families […]