16 Sep

KdVSF Connect – Get Excited for Summit!

Are you attending the Koolen-de Vries Syndrome Foundation’s Patient Advocacy Summit in Chicago? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event […]

READ MORE
16 Sep

KdVSF Connect – Newly Diagnosed Families

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, […]

READ MORE
16 Sep

KdVSF Connect – Caregiver Emotional Support

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 03/09/2025 […]

READ MORE
16 Sep

KdVSF Connect – Kool Meet Up

Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

READ MORE
8 Sep

KdVSF Connect – Kool Meet Up

Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

READ MORE