Navigating Life with Koolen-de Vries Syndrome

Ethan Deremer is 23 years old and was diagnosed with Koolen-de Vries Syndrome in 2014. He recently submitted a short essay and was featured on the Our Odyssey website. Our Odyssey connects young adults who are impacted by a rare or chronic conditions with social and emotional support in the hope of improving their quality of life.

Read Ethan’s article here.

To read more about Our Odyssey or get involved, visit their website.

Categories :

Subscribe to our emails

Select list(s) to subscribe to

By submitting this form, you are consenting to receive marketing emails from: Koolen-de Vries Syndrome Foundation, 609A Piner Road, Wilmington, NC, 28409. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Constant Contact