Meet New Board Member Emily Lemke

The Koolen-de Vries Syndrome Foundation has welcomed our newest Board member, Emily Lemke. Emily (she/her) has lived all over the United States, working in both music education and clinical mental health. She holds a master’s degree in social work from the University of Maryland-Baltimore and a bachelor’s degree in music education from the University of Illinois. In 2018, Emily started Tiny Tubie Shop, an online store for medically fragile and tube-fed families. She became interested in Koolen de-Vries Syndrome when her daughter was diagnosed at 18 months. Emily is a Summit Committee co-chair and enjoys sewing, perfecting homemade pizzas, and exploring new cities and national parks. To read more about Emily, please visit: https://kdvsfoundation.org/board-of-directors/