Podcast Feature: Wait, How Do You Spell That?

Our very own Board President Ashley Point was featured on an episode of the podcast “Wait, How Do You Spell That? A Rare Disease Podcast”. In the episode, Ashley shares the story of her son, Kool Kid Davis, and how his 2016 KdVS diagnosis catapulted her into dedicating her life to supporting KdVS families through advocacy, research, and fundraising.