January 21, 2024
The Koolen-de Vries France group marched through the streets of the capital with KdVS signs to help raise awareness. The march was organized by France’s Rare Disease Alliance or “Alliance Maladies Rares,” who organizes a walk each year to represent all the rare disease associations. The walk, which took place in Paris, was over 7 kilometers (4.3 miles). All the associations paraded with signs that donned the name of their illness. This event brought over 1,000 people together.
Merci, KdV France!