KdVS Foundation joins NORD

The Koolen-de Vries Syndrome Foundation is now a member of the National Organization for Rare Disorders or NORD! NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with with its more than 300 patient organization members, is committed to the identification, treatment and cure of rare disorders through programs of education, advocacy, research and patient services.

If you’d like to learn more, visit: https://rarediseases.org/rare…/koolen-de-vries-syndrome/