Join the Contact Registry

The Koolen-de Vries Syndrome Foundation is passionate about preparing our community to be “research ready”. One critical step is having a contact registry of diagnosed families. Did you know that there is no one database of diagnosed individuals anywhere in the world? We are often asked how many people are diagnosed with KdVS and the answer is that we don’t know! Help us continue to grow our database registry!

Categories :

Subscribe to our emails

By submitting this form, you are consenting to receive marketing emails from: Koolen-de Vries Syndrome Foundation, 609A Piner Road, Wilmington, NC, 28409. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Constant Contact