Join Summit Co-Chairs Katie Maher & Tony Pechek to dive into the feedback we received from the 2025 KdVSF PAS. Once we analyze and discuss what participants had to say, then we'll begin making some decisions about what we'll carry into this next summit in Colorado. We'll also begin delegating tasks and responsibilities to our lovely […]

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years! We look forward to connecting and supporting you. Sunday, 05/17/2026 at 8 pm EST