Join KdVS Connect's monthly Zoom call to discuss all things epilepsy! Approximately 50% of individuals diagnosed with Koolen-de Vries Syndrome are also diagnosed with epilepsy. On November 20, 2021 at 12:00 pm EST, parents are invited to share their child's epilepsy journey and learn from the experiences of other families. Get support, give support! What […]
Join us December 4, 2021 at 12:00 pm EST for a KdVS Connect just for all the Kool grandparents! This event is a virtual event, held through Zoom, so don't forget to register!
Dr. Daphna Landau is an orbital and oculoplastic surgeon at the Goldschleger Eye Institute, Sheba Medical Center, Israel, and a research affiliate at the division of Ophthalmology, Children’s Hospital of Philadelphia (CHOP). She has an MD degree from Tel Aviv University and a BSc in Mathematics with Computer Science from the Technion - Israel Institute […]
Join us on Zoom January 16, 2022 at 8 pm ET for an Emotional support group for KdVS parents/caregivers. What's been the most difficult part about being a KdVS parent? How do you cope?
Join us on February 9th, 2022 at 6 pm ET for a conversation with Prof. Angela Morgan and her PhD student, Olivia Van Reyk! They will be providing updates on their Speech Tracker study that builds on their previous research showing that speech and language is a core developmental challenge for children with Koolen-de Vries […]
Join us for KdVS Connect on February 12, 2022 at 12 pm ET. This month's theme is connection within your geographic region. Registration link below - make sure you tell us where you are joining our Zoom call from (Europe, Australia/New Zealand, Central/South America, Africa, Asia, or if inside the USA, please specify general region).
Join Koolen-de Vries Syndrome Foundation for a virtual Zoom event. March 13, 2022 at 8 pm ET - KdVS young adults and their parents are invited to discuss transitions to adulthood and independent living. Don't forget to register!
Join the Koolen-de Vries Syndrome Foundation for a virtual KdVS Connect zoom call. On April 9, 2022 at 12 pm ET, attendees will have the chance to discuss all things related to speech. What works or has worked for your Kool Kid? How has communication changed or improved with age? Don't forget to register!
Join the KdVS Foundation for a conversation with Kool Mom and dentist, Dr. Katie Pecheck. Register and submit your dental questions here. After registering, you will receive a confirmation email containing information about joining the webinar.
Koolen-de Vries Syndrome Foundation, IDefine and SETBP1 Society are excited to form a partnership called "It Takes a Village". Through this partnership, our wonderful communities will have the chance to share resources and join informative webinars that apply to our populations. The first webinar is for families with children in PreK thru 4th grade. Join […]
