Are you attending the Koolen-de Vries Syndrome Foundation's Patient Advocacy Summit? This special KdVSF Connect is a chance to ask any of your last-minute Summit questions!   The event takes place June 11, 2023 at 8 pm EASTERN TIME! Not sure what time that is for you? Check your timezone HERE! KdVSF Connect events are a […]

Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 10/22/2023 at 8 pm EST Thursday, 2/3/2024 at 8 pm EST Saturday, 5/18/2024 at 12 pm EST […]

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 11/5/2023 at 8 pm EST Tuesday, 3/12/2024 at 8 pm EST

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 1/21/2024 at 8 pm EST Thursday, 4/11/2024 at 8 pm EST

Join Chief Scientific Officer Dr. Anna Pfalzer to hear about the UCLA CHAMPION Study to learn more about this research opportunity. Register here.     UCLA CHAMPION STUDY (CHROMATINOPATHIES AND AUTISM: MOTOR PHENOTYPING AND INDICATORS OF NEURODEVELOPMENT) This study is being conducted both in-person at UCLA in Los Angeles and virtually. Eligible children anywhere in […]

Join the KdVS Foundation for a Meet & Greet open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Thursday, 2/3/2024 at 8 pm EST Saturday, 5/18/2024 at 12 pm EST Zoom link coming soon.

Join us for a chat with Dr. Lacey Carmen Chetcuti of Stanford University about a new research study that will look at both children who are typically developing and children who might have some form of neurodevelopmental condition or delay. Learn all about the involvement, benefits, and how the information can be used. To be […]

Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Tuesday, 3/12/2024 at 8 pm EST

Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Thursday, 4/11/2024 at 8 pm EST

Join our Chief Scientific Officer Dr. Anna Pfalzer on Thursday, April 25, 2024 at 12:00 PM ET as she chats with Research Associate James Schmidt who works in Dr. Helen Willsey's Lab at UCSF. Register to join the webinar and listen live and ask your questions! Can't join us on Thursday? That's ok! The webinar […]