Events

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Today

  • CSO Research Chat with genetic counselor

    Join us Thursday 6/27/24 for a Research Chat with KdVSF Chief Scientific Officer Dr. Anna Pfalzer and Adalyn Kim, a genetic counselor student at Medical College of Wisconsin. This chat will take place at 11am ET, so please mark your calendar and don’t forget to register!

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 9/29/2024 at 8 pm EST

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 10/27/2024 at 8 pm EST

  • KdVSF Connect – Caregiver Emotional Support

    Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 11/10/2024 at 8 pm EST

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 1/12/2025 at 8 pm EST

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 02/23/2025 at 8 pm EST

  • KdVSF Connect – Caregiver Emotional Support

    Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 03/09/2025 at 8 pm EST

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 04/06/2025 at 8 pm EST

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 05/04/2025 at 8 pm EST

  • Summit Registration Chat

    Join our chat from 7:00-8:00pm EST to chat about Registration for KdVSF Summit 2025!