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Today

  • CSO Chat with Researcher Dr. Yann Herault

    Join Koolen de Vries Syndrome Foundation's Chief Scientific Officer Dr. Anna Pfalzer for a zoom webinar with Dr. Yann Herault. The webinar will be held May 30, 2024 at 11 am ET. Don't forget to register!

  • CSO Research Chat with genetic counselor

    Join us Thursday 6/27/24 for a Research Chat with KdVSF Chief Scientific Officer Dr. Anna Pfalzer and Adalyn Kim, a genetic counselor student at Medical College of Wisconsin. This chat will take place at 11am ET, so please mark your calendar and don’t forget to register!

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 9/29/2024 at 8 pm EST

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 10/27/2024 at 8 pm EST

  • KdVSF Connect – Caregiver Emotional Support

    Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 11/10/2024 at 8 pm EST

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 1/12/2025 at 8 pm EST

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 02/23/2025 at 8 pm EST

  • KdVSF Connect – Caregiver Emotional Support

    Join the KdVS Foundation for a Caregiver Emotional Support meeting open to parents and caregivers of individuals diagnosed with KdVS! We look forward to connecting and supporting you. Sunday, 03/09/2025 at 8 pm EST

  • KdVSF Connect – Kool Meet Up

    Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. We look forward to connecting with you! Sunday, 04/06/2025 at 8 pm EST

  • KdVSF Connect – Newly Diagnosed Families

    Join the KdVS Foundation for a Newly Diagnosed Families meeting open to any KdVS families diagnosed within the past 3 years)! We look forward to connecting and supporting you. Sunday, 05/04/2025 at 8 pm EST