In 2017, Koolen-de Vries Syndrome Foundation hosted the first KdVS Patient Advocacy Summit in Memphis, TN. The goal of the event was to bring families and doctors together to network, learn and socialize. The Summit, which is held every two years, was held in Park City, Utah in 2019. Due to Covid, in 2021 we are hosting a virtual event!!
This event promises to be exciting! Prepare for a KOOL experience with Koolen-de Vries Syndrome Foundation and the exceptional KdVS community. Speakers, live Q&A sessions and networking opportunities are all included in the schedule.
Continue to check the website for updates over the upcoming months but also join us on Facebook! Connect with others interested in attending, ask questions and get excited!