In 2017, Koolen-de Vries Syndrome Foundation hosted the first KdVS Patient Advocacy Summit in Memphis, TN. The goal of the event was to bring families and doctors together to network, learn and socialize. The Summit, which is held every two years, was held in Park City, Utah in 2019 and in 2021, we are excited to be visiting Orlando, Florida!
This event promises to be exciting! The venue is beautiful and the speaker line up will be top-notch! Prepare for a KOOL experience with Koolen-de Vries Syndrome Foundation and the exceptional KdVS community. See you in Orlando!
Continue to check the website for updates over the upcoming months but also join us on Facebook! Connect with others interested in attending, ask questions and get excited!