Alayna, Author at Koolen-de Vries Syndrome Foundation

8 Mar

KdVS Foundation announces Investigator Grant

The Koolen-de Vries Syndrome Foundation (KdVSF) is pleased to announce their Investigator Grant program. Through our Investigator Grant, KdVSF hopes to accelerate the development of therapeutics for the treatment of […]

2 Mar

Kool Warrior – Anna

This week, we’re featuring Kool Warrior Anna! She’s a 6-year-old book lover who loves visiting Barnes & Noble. Anna can count all the way to 20, and absolutely loves to […]

23 Feb

Kool Warrior – Nautilus

It’s time for another Warrior Wednesday! Meet Kool Warrior Nautilus. Nautilus is 11 years old and is incredibly creative and loving. He loves to listen to music while playing outside […]

16 Feb

Kool Warrior – Mariah

This week’s Kool Warrior is Mariah! Mariah is a 9-year-old prankster who loves joking and scaring people! She loves to sing and dance and will do so all day long. […]

10 Feb

Koolen-de Vries Syndrome Foundation Selects Clinical Fellow

For Immediate ReleaseFebruary 10, 2022 Koolen-de Vries Syndrome Foundation Selects Clinical Fellow to Study the Use of Artificial Intelligence andSpeech Therapy in Assisting Clinicians in Diagnosing KdVS WILMINGTON, N.C. – […]

9 Feb

Kool Warrior – Jacob

This week’s Kool Warrior is Jacob! Jacob is a senior in high school and loves riding 4-wheelers! He is a true outdoorsman! Jacob loves to deer and duck hunt but […]

2 Feb

Kool Warrior Patrick

Meet this week’s Kool Warrior, Patrick! Patrick is 28 years old and lives in Canada. He is a proud employee of Horizon Achievement Center and keeps up with his coworkers […]

29 Jan

Meet New Board Member Emily Lemke

The Koolen-de Vries Syndrome Foundation has welcomed our newest Board member, Emily Lemke. Emily (she/her) has lived all over the United States, working in both music education and clinical mental […]

26 Jan

Kool Warrior – Jeremiah

Meet this week’s Kool Warrior, Jeremiah! Jeremiah is 10 years old and a huge music fan! He loves shows like The Voice and The Masked Singer. Jeremiah is a big […]

19 Jan

Kool Warrior Eugénie

Meet this week’s Kool Warrior, Eugénie! Eugénie is a 2-year-old who loves to dance! She loves looking up at the trees when she’s swinging outside and begins every day with […]