Meet this week’s Kool Warrior Avary! Avary is 9 months old and loves rolling around! She loves snuggling with her parents and is a huge fan of playing Peek-a-Boo! Avary […]
Meet this week’s Kool Warrior, Maor! Maor is 4 years old and a very fun-loving kid. He loves to play and make messes with his sister. Maor is very determined […]
Do you love a discount? Do you love KdVS gear? What about helping further important research? If yes, read on for a really cool way YOU can make a difference. […]
Meet this week’s Kool Warrior, Harvey! Harvey is 4 years old and loves to sing! He is a huge animal lover and is always smiling. He really loves superheroes. Finally, […]
Now available on YouTube, catch up on the RARE-X Introduction webinar, held June 23, 2022. In this webinar, members of the Koolen-de Vries Syndrome Foundation and Megan O’Boyle of RARE-X […]
Meet this week’s Kool Warrior, Wyllow! Wyllow has three brothers and is a huge music lover! She loves to talk and her favorite word is “Dada.” Her favorite cereal is […]
Meet this week’s Kool Warrior, Dominic! Dominic is 4 years old and lives in Canada with his parents and three fur-siblings! Dominic loves meeting new people and is very social. […]
The KdVS Foundation is so grateful for individuals like María Luisa & Gonzalo. After last year’s success they’re launching the second edition of the Swimming Challenge! They expect to host […]
