Roadmap Project

The Koolen-de Vries Syndrome Foundation is excited to announce that we are one of the 147 organizations which have partnered with the Castleman Disease Collaborative Network and the Chan Zuckerberg Initiative on the ROADMAP project.

Repurposing Of All Drugs, Mapping All Paths

What is Drug Repurposing?

Drug repurposing is a way to get treatments to rare disease patients faster and cheaper than developing new drugs, by utilizing existing FDA-approved drugs. This requires additional research, clinical trials and patients sharing their medical records in registries.