2017 – Patient Advocacy Summit – Memphis, Tennessee

Memphis, Tennessee July 13 – 15, 2017

The planning for the 2017 Koolen-de Vries Syndrome Patient Advocacy Summit is underway. The event will take place on July 13-15, 2017 in Memphis, TN. The event’s goal is for patients, caregivers and advocates to walk away equipped with information, ideas and goals to help form an action plan for the future. Participate in lectures, Q&A’s, open discussions to learn valuable information and enjoy fun activities bonding with other KdVS families. We have many doctors already prepared to attend this event either as a speaker or as part of our Q&A event. Dr. Koolen and Dr. de Vries are both planning to attend. Please join the Facebook page and we will post updates for this event as they are available.

Click here to register and for more event details!

Please click here to visit the Facebook group.