8 Sep

KdVSF Connect – Kool Meet Up

Join the KdVS Foundation for a Kool Meet Up open to all KdVS Individuals and their families! Join the zoom call to meet and greet new and old families alike. […]

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31 Jan

Meet Tom Kelsall, an amazing cyclist

Tom Kelsall, a teenager diagnosed with Koolen-de Vries Syndrome and Type 1 diabetes, has an amazing and inspirational story to tell. Remember his name and cheer him on as he […]

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24 Sep

KdVS Foundation attends Global Genes Summit

Board Member Andy Speirs and his wife, Virginia, represented Koolen-de Vries Syndrome Foundation at the Global Genes Patient Advocacy Summit. They were able to network and make great contacts in […]

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