Owen
Age: 1.3
Sibling's Name(s): Eddie
Parent's First Name(s): Gina
Parent's Last Name(s): Coughlin
Mutation or Deletion: Deletion
Diagnosis Date: 04/17/2024
DonateHow did you feel when your child was first diagnosed?
Scared, anxious, sad
What does your KdVS individual love the most?
His family
How does KdVS affect your child?
Delays in gross motor, fine motor, speech.
What is the hardest part about being a KdVS parent?
The inability to make life easier for my child.
What would you tell newly diagnosed parents about KdVS?
Find a good support system for you and your family.
What would you tell doctors, teachers and therapists about KdVS individuals?
Do not underestimate them. Being proactive is best.
