Raise awareness for Koolen-de Vries Syndrome and show your support for all of our hard-working friends living with KdVS!
Join Koolen-de Vries Syndrome Foundation in our 2019 “Tri” to be Kool Virtual Triathlon! This is our fourth annual Triathlon and this year all proceeds from the event will benefit a current KdVS Research Project investigating the syndrome on a cellular level.
The triathlon that can be completed from anywhere around the world between October 17 and November 17. Required distances are uniquely set (1.7 mile swim, 21 mile run, and 31 mile bike) in order to promote awareness of Koolen-de Vries Syndrome (KdVS). Distances can be broken down at your convenience or can be completed at once; you have one month to complete the events! After your purchase, please join the event Facebook Page (Tri to be Kool: Virtual Triathlon) for more details and to finish your sign up!
Not a swimmer? Don’t have a bike? That’s just fine! While our event is geared towards completing our unique triathlon, we want anyone and everyone to participate! We encourage you to use the event to challenge yourself and put in some hard work to show your support of our determined Kool friends. Choose the workout type that matches your abilities (for example, run/bike/run, or bike 17 & 21 & 31 miles, etc.) and go out and raise some awareness!
You’ll receive a Koolen-de Vries Syndrome awareness bracelet and a t-shirt at the end of the event, as well as a bib to print and display during your workouts (take pictures and post to help spread awareness) and access to the Facebook group for support.