22 Jun

$100,000 Grant Awarded

For Immediate Release June 22, 2021 Koolen-de Vries Syndrome Foundation Awards $100,000 Grant to Post-doctoral Fellow for Further “Brain-in-a-Dish” Research WILMINGTON, N.C. – The Koolen-de Vries Syndrome Foundation recently awarded a $100,000 post-doctoral fellowship grant award to post-doctoral fellow Dr. Brooke Latour for her work in neural development and neurodevelopmental disorders, and how it relates […]

3 Sep

Koolen-de Vries Syndrome Foundation Announces a New President of the Board of Directors

September 3, 2020 Contacts: Ashley Point, 704/342-1445, ashley@kdvsfoundation.org Patty Tiberg, 817/905-1360, patty@kdvsfoundation.org Wilmington, NC-The Koolen-de Vries Syndrome Foundation (KdVSF), whose mission is to educate, increase awareness and promote research for the support and enrichment of individuals living with Koolen-de Vries Syndrome (KdVS) and their families, announced today the election of Ashley Point to the role […]

12 Nov

Leadership Transitions in Koolen-de Vries Syndrome Foundation Non-Profit Organization

Having a child with an illness or a disease is a circumstance that can turn almost any parent into a fierce advocate. For Laura Ralph of Brownsburg, Indiana, her advocacy became a calling when she founded Supporting Families with Koolen-de Vries Syndrome (SFKdVS) in 2013. Ralph, who has served as president since the Foundation’s formation, is now stepping aside to hand the reins to Patty Tiberg of Aledo, Texas, whose son, Colby, has the syndrome.