Meet Kool Warrior Benny! Benny’s birthday is next month, and he will be 4-years-old! He loves ice cream, but is not a fan of mint chocolate chip. He enjoys swimming […]
This week, we’re highlighting Kool Warrior Coraline! This little 1-year-old cutie loves animals, especially her dog Frankie. She enjoys being silly with her older sister, Millie and loves Disney music! […]
Kool Individual Cole Wyatt has been chosen as Cabrini Hospital’s 2022 Children’s Miracle Network Child of the Year in Alexandria, Louisiana. Now 2-year-old Cole was diagnosed with KdVS only one […]
Meet Axel! This 6-year-old Kool Warrior loves playing outside, especially if there’s a trampoline involved. He loves spending time with family and enjoys helping them do chores around the house! […]
Koolen-de Vries Syndrome Foundation would like to announce the newest member of our Medical Advisory Board, Dr. Katie Pechek. Dr. Pechek completed her undergraduate degree in Athletic Training from Creighton […]
Meet Kool Warrior Cole! Cole is 9 years old and just learned to ride a 2-wheel bike! He loves spending time with his Grammy and swimming. Cole is a big […]
Meet this week’s Warrior, Andrea! Andrea is a 5-year-old cutie who loves socializing. She’s got a curious side and loves discovering new things. Andrea loves animals, and wants to become […]
We’re highlighting Kool Warrior Christian! Christian is 2 years old and loves to play with LEGO DUPLO! He likes watching cartoons and eating his favorite foods, pizza and fruit. He […]
We’re highlighting Kool Warrior Julietta! Julietta is 6 years old and loves animals so much that she wants to be a veterinarian! She also loves musical instruments and singing. Julietta […]
Today, we’re highlighting Kool Warrior Grayson! Grayson is 5 years old and is a big fan of hugs and kisses. He wants to be a police officer when he grows […]
