Koolen-de Vries Syndrome Foundation

Patient Advocacy Summit

July 14-16, 2027

Denver, Colorado, USA

 Hyatt Regency Denver Tech Center:

7800 East Tufts Ave

Denver, CO, USA 80237

Patient Advocacy Summit

From July 14-16, 2027, the KdVS Foundation will host a Summit for families in the KdVS community. Families will be able to attend a variety of educational sessions and KdVS community events.

Scientific Summit

On July 14, 2027, the KdVS Foundation will host an all-day Scientific Summit. This event is open to KdVS researchers who will join together to discuss current and future research, to network and to collaborate.

Hotel & Tech Center

The Hyatt Regency Denver Tech Center will have room blocks available for folks joining us at summit 2027. Book your KdVS preferred room rate at the button below.

Book Now

Sponsorship Information

Support and partnerships are vital to helping the KdVS Foundation achieve our mission. We are happy to customize packages for all donations, please contact Ashley at [email protected] for more information.

Summit 2027 FAQs

Where is KdVS Summit 2027?

The KdVSF PAS will be held at Hyatt Regency Denver Tech Center in Denver, Co, USA

Address: 7800 East Tufts Avenue, Denver, CO 80237, United States of America

Is there a schedule of events?

Absolutely!

The Hyatt Regency Denver Tech Center will house the entirety of the summit including, but not limited to: 

Wednesday 7/14/27: family registration, From Diagnosis to Direction: KdVS 101, Legacy Reception, and the grand Kickoff Celebration!

Thursday 7/15/27: sessions focused on medical, educational, financial, and social/emotional needs of our KdVS individuals, one-on-one’s, research opportunities, a group lunch, and family events!

Friday 7/16/27: more sessions like Thursday, plus the conclusion of the Rock, Paper, Scissors Tournament, parent panels, and another family event!

What else is there to do around Denver, CO?

We’re glad you asked because there is a lot to do if you plan to extend your stay beyond KdVS PAS 2027:

  • Light Rail ride away to Downtown area (20-30 minutes to downtown):
    • Denver Aquarium, 6 Flags Elitch Gardens, Children’s Museum of Denver at Marsico Campus, Meow Wolf, Denver Mint
  • Driveable:
    • Denver Zoo, Top Golf,  Denver Museum of Nature and Science, Wings Over the Rockies Air and Space Museum, SweetPlay Greenwood Village, Urban Air Adventure Park

Who may I contact about the KdVS PAS 2027?

Please contact either of our board members and summit committee leaders, Katie and Tony at [email protected] with any questions!