Thursday, 7/13/17 (Optional Activities)
• 7:00 – 8:00 am | Breakfast at Embassy Suites and Hampton Inn & Suites for hotel guests |
• 7:00 – 8:15 am | Registration Open in Embassy Suites Lobby |
• 8:45 am | Arrive at St. Jude Children’s Research Campus |
• 9:00 – 10:15 am | Group 1 tour of St. Jude Children’s Research Hospital* |
*Children’s activities will take place in the Pavilion during the tours (one parent will need to be present at all times with their children.) | |
• 10:30 – 11:45 am | Group 2 tour of St. Jude Children’s Research Hospital* |
*Children’s activities will take place in the Pavilion during the tours (one parent will need to be present at all times with their children.) | |
• Morning | Doctors present the latest on KdVS to St. Jude Medical Staff (Doctors only) |
• 12:00 – 1:00 pm | Lunch provided by St. Jude |
• 1:15 pm | Depart St. Jude Children’s |
• Afternoon | Doctors present to Le Bonheur Children’s Hospital (Doctors Only) |
• 4:30 – 6:00 pm | Meet and Greet at Hampton Inn & Suites |
• 6:00 – 7:00 pm | Registration Open in Embassy Suites Lobby |
Friday, 7/14/17
• 7:00 – 8:00 am | Breakfast at Embassy Suites and Hampton Inn & Suites for hotel guests |
• 7:00 – 9:00 am | Registration Open in Embassy Suites Lobby |
• 7:45 am – 3:15 pm | Childcare open in Hampton Inn & Suites (advance registration required – CHILDCARE REGISTRATION IS NOW CLOSED) |
• 8:00 – 8:15 am | Welcome and opening Remarks in Embassy Suites |
• 8:15 – 8:45 am | Dr. Bert de Vries – Getting to KdVS: a History |
• 8:45 – 9:15 am | Dr. David Koolen – The Clinical Spectrum of KdVS |
• 9:15 – 9:30 am | Break |
• 9:30 – 10:00 am | Katrin Linda, Radboud University Medical – Underlying Mechanisms and Molecular Data |
• 10:00 – 10:45 am | Dr. Morgan – KdVS Speech Study Results |
• 10:50 – 11:35 am | Dr. Myers – KdVS Epilepsy Study Results |
• 11:45 am – 1:00 pm | Table Topic Lunch (paid adults only) |
• 1:15 – 2:00 pm | Dr. Mark Durand – Dealing with Sleep Issues for Special Needs Individuals |
• 2:00 – 2:30 pm | Eugenia Kim and Jeff Berg – Post-School Experience in Life and Job for Special Needs Individuals |
Saturday, 7/15/17
• 7:00 – 8:00 am | Breakfast at Embassy Suites and Hampton Inn & Suites for hotel guests |
• 7:00 – 9:00 am | Registration Open in Embassy Suites Lobby |
• 8:00 – 8:15 am | Welcome and Opening Remarks in Embassy Suites – KdVS Special Guest, Sam Goto |
• 8:15 – 9:30 am | Moderated Q&A Session with doctors and speakers |
• 11:00 am – 3:00 pm | Carnival Event for Families (free for everyone) |
• 6:35 pm | Redbirds Baseball Game (optional) $16 ticket includes box seat, hot dog, drink and baseball cap FIREWORKS AFTER THE GAME. Read more under “Plan Your Trip”. |